Privacy, Confidentiality, and Health Research(English, Hardcover, Lowrance William W.)

Know about the book -

Privacy, Confidentiality, and Health Research(English, Hardcover, Lowrance William W.) is written by Lowrance William W. and published by Cambridge University Press. It's available with International Standard Book Number or ISBN identification 1107020875 (ISBN 10) and 9781107020870 (ISBN 13).

The potential of the e-health revolution, increased data sharing, database linking, biobanks and new techniques such as geolocation and genomics to advance human health is immense. For the full potential to be realized, though, privacy and confidentiality will have to be dealt with carefully. Problematically, many conventional approaches to such pivotal matters as consent, identifiability, and safeguarding and security are inadequate. In many places, research is impeded by an overgrown thicket of laws, regulations, guidance and governance. The challenges are being heightened by the increasing use of biospecimens, and by the globalization of research in a world that has not globalized privacy protection. Drawing on examples from many developed countries and legal jurisdictions, the book critiques the issues, summarizes various ethics, policy, and legal positions (and revisions underway), describes innovative solutions, provides extensive references and suggests ways forward. Table of Contents 1. Introduction 2. Data, biospecimens, and research 3. Privacy, confidentiality, safeguards 4. Broad privacy and the data protection regimes 5. Health care, public health, and research regimes 6. Consent 7. Identifiability and person-specific data 8. Genetics and genomics 9. Safeguards and responsibilities 10. Data sharing, access, and transfer 11. Ways forward.